Scottish Landmarks to turn orange for Batten Disease Awareness Day

Scottish Landmarks to turn orange for Batten Disease Awareness Day

Landmarks across Scotland including SSE Hydro, Discovery Point and RRS Discovery Dundee, Tron Theatre and many more will be lighting up orange today to raise awareness of Batten Disease.

Batten disease is a rare genetic neurodegenerative disease that always results in death. There are a number of types of the disease. Symptoms include blindness, uncontrollable seizures, sleep difficulties, loss of speech and swallowing, and the development of childhood dementia. Each type of Batten disease is diagnosed at different points of a child’s life and the life expectancy ranges from 4 – 30 years old depending on which type of the disease the child has.

There is no cure.

Samantha Barber, CEO of BDFA, said: “Every Batten Disease Awareness Day is pivotal in raising awareness of this devastating rare disease. This year BDFA are delighted and grateful that several venues are marking this important day. Members of the public can show their support by wearing something orange and sharing their picture with us on social media using #BattenDisease.

“Each year, children are diagnosed with Batten disease. They and their families rely on the BDFA to support them through the difficult times. We receive no government funding. If you would like to donate to BDFA to show your support, please visit our website at www.bdfa-uk.org.uk.”


Organisers are asking the public to share their pictures of buildings lit up on social media using hashtag #battendisease.

Last Updated: 7 June 2019 11:33
Source: BDFA

Latest Local News

Drop into a garden near you

Drop into a garden near you

Winter will soon give way to spring and snowdrops will bloom across Inverclyde, carpeting the region with this popular flowering plant.
Last Updated: 24th January 2020
Get discounted tickets to the Scottish Cycling, Running & Outdoor Pursuits Show

Get discounted tickets to the Scottish Cycling, Running & Outdoor Pursuits Show

It's back! Scotland's premier event for outdoor sports returns for 2020 and you can save 50% on tickets with our special discount code!
Last Updated: 23rd January 2020
Family Half Term Fun With Macdonald Resorts

Family Half Term Fun With Macdonald Resorts

Macdonald Resorts is offering half-term discounts on all holiday accommodation at their resorts throughout both the UK and Spain.
Last Updated: 23rd January 2020
Who Wants To Be A Millionaire: Applications Open!

Who Wants To Be A Millionaire: Applications Open!

Who Wants To Be A Millionaire is now casting for the next series and searching for Britain’s brightest brains to take part.
Last Updated: 22nd January 2020
Growing careers with the RHS at Castlebank Horticultural Centre

Growing careers with the RHS at Castlebank Horticultural Centre

Castlebank Horticultural Centre in Lanark will soon be offering a horticultural qualification through the Royal Horticultural Society (RHS).
Last Updated: 17th January 2020
The Scottish Wedding Show returns for its February showcase

The Scottish Wedding Show returns for its February showcase

Scotland’s largest wedding showcase will be returning to the SEC, Glasgow next month, offering brides and grooms-to-be everything they need to plan their perfect wedding, under one roof!
Last Updated: 17th January 2020
Book up to break away with Macdonald Resorts

Book up to break away with Macdonald Resorts

Macdonald Resorts has unveiled its 2020 holiday offers and Winter Sale!
Last Updated: 13th January 2020
Clyde in the Classroom celebrates 20 years of river ecology

Clyde in the Classroom celebrates 20 years of river ecology

Clyde in the Classroom – a unique, hands-on project that seeks to bring the River Clyde into classrooms around the West of Scotland – is celebrating its 20th anniversary!
Last Updated: 9th January 2020
Whyte & Mackay Glasgow International Comedy Festival 2020 Programme Announced

Whyte & Mackay Glasgow International Comedy Festival 2020 Programme Announced

The Whyte & Mackay Glasgow International Comedy Festival is turning eighteen in style with over 500 shows running between 12th and 29th March with 60 venues across Glasgow taking part!
Last Updated: 8th January 2020
Salvage Hunters on hunt for Scottish locations to feature on the upcoming series

Salvage Hunters on hunt for Scottish locations to feature on the upcoming series

Salvage Hunters, the well-loved and most watched Discovery Network show is on the hunt for locations to feature on the upcoming series.
Last Updated: 7th January 2020
Macdonald Resorts to help spread Christmas cheer with Emergency Service Discount

Macdonald Resorts to help spread Christmas cheer with Emergency Service Discount

To thank Emergency Service workers and help them relax after the festive season, Macdonald Resorts is offering an exclusive discount to be enjoyed after the big day.
Last Updated: 12th December 2019
Planning a festive proposal...

Planning a festive proposal...

Macdonald Hotels & Resorts has marked the most romantic locations within its hotels with a velvet cushion designed to provide comfort to those getting down on one knee.
Last Updated: 10th December 2019
Mrs Browns Boys is Back!

Mrs Browns Boys is Back!

The Award-Winning Brendan O’Carroll and Mrs. Brown’s Boys have announced a live return to Edinburgh in 2020 with ‘Mrs Brown D’ Live Show.
Last Updated: 7th December 2019
Get your hands on some of the hottest tickets in town this Black Friday

Get your hands on some of the hottest tickets in town this Black Friday

This Black Friday sees some amazing offers available on tickets for the biggest and best shows and gigs in Glasgow and Edinburgh!
Last Updated: 29th November 2019
Lewis Capaldi, Liam Gallagher and Courteeners to headline TRNSMT 2020

Lewis Capaldi, Liam Gallagher and Courteeners to headline TRNSMT 2020

Lewis Capaldi, Courteeners and Liam Gallagher bring top drawer headline performances to the heart of the city when TRNSMT returns in 2020!
Last Updated: 26th November 2019
Showcase Glasgow East upgraded to state of the art cinema

Showcase Glasgow East upgraded to state of the art cinema

Cinema-goers can now enjoy state of the art comfort at the movies thanks to the recent completion of a luxury refurbishment to Showcase Glasgow East, which has re-branded as a Showcase Cinema de Lux!
Last Updated: 15th November 2019
Cat Hepburn embarks on Scottish student tour as part of Book Week Scotland

Cat Hepburn embarks on Scottish student tour as part of Book Week Scotland

The Scottish Book Trust has announced that award winning scriptwriter and spoken word artist Cat Hepburn will embark on a tour for Scottish students as part of Book Week Scotland.
Last Updated: 13th November 2019
Scotland asked to come together with One Kind Act

Scotland asked to come together with One Kind Act

The people of Scotland are being encouraged to celebrate St Andrew's Day (30th November) by carrying out an act of kindness!
Last Updated: 12th November 2019
Enjoy breakfast with Santa at Dobbies

Enjoy breakfast with Santa at Dobbies

For a festive feast that your little ones won't forget, Dobbies is giving families the chance to enjoy a special breakfast with Santa!
Last Updated: 6th November 2019
Lanark shortlisted for the online vote to crown most beautiful high street

Lanark shortlisted for the online vote to crown most beautiful high street

Eight towns shortlisted for the online vote to crown Scotland’s most beautiful high street including Lanark!
Last Updated: 30th October 2019
Record crowds roll up to Paisley Halloween Festival

Record crowds roll up to Paisley Halloween Festival

Paisley celebrated its biggest ever Halloween Festival as 41,000 people flocked to the town to see the amazing floats, circus performers and spectacular Mardi-Gras style parade!
Last Updated: 27th October 2019
Lanark Winterfest returns with over 40 festive events!

Lanark Winterfest returns with over 40 festive events!

The Lanark Winterfest Programme, produced by Lanark Community Development Trust, has been launched with details of over 40 festive events taking place in Lanark during November and December.
Last Updated: 25th October 2019
Halloween family fun at Castlebank Horticultural Centre

Halloween family fun at Castlebank Horticultural Centre

Families are invited to attend Lanark Community Development Trust's 'Ghouls in the Garden' Halloween event on Thursday 31st October!
Last Updated: 21st October 2019
Paisley set for Fireworks spectacular

Paisley set for Fireworks spectacular

The skies above Paisley Abbey are set to be lit up with a dazzling fireworks display on Saturday 2nd November!
Last Updated: 21st October 2019
The countdown to GlasGLOW is on!

The countdown to GlasGLOW is on!

Marshmallowland, an epic bar and the best of Glasgow's street food, itison unveils GlasGLOW's food and drink line up featuring West End favourites Loop and Scoop!
Last Updated: 21st October 2019
Spectacular show lights up history for visitors

Spectacular show lights up history for visitors

VIP guests and press were given the chance to visit New Lanark World Heritage Site's NEW light installation preview last night ahead of its grand opening today!
Last Updated: 11th October 2019
Tickets for new Elfingrove dates on sale tomorrow at 12noon

Tickets for new Elfingrove dates on sale tomorrow at 12noon

Get set for 12noon tomorrow to bag tickets to the biggest Christmas spectacular in town!
Last Updated: 7th October 2019
The Spree Festival set to bring biggest line up yet to Paisley

The Spree Festival set to bring biggest line up yet to Paisley

Paisley's The Spree festival returns next week (11th - 19th October) with its biggest line-up yet!
Last Updated: 4th October 2019
Renfrewshire set for spectacular season of winter events

Renfrewshire set for spectacular season of winter events

Renfrewshire is gearing up for another bumper season of fantastic winter events with an array of free, fun-filled activities for all!
Last Updated: 4th October 2019
New Elfingrove dates added after 120,000 tickets sold in 24 hours

New Elfingrove dates added after 120,000 tickets sold in 24 hours

Following phenomenal demand, itison has announced it's adding an additional seven nights onto Elfingrove – the Christmas spectacular taking over Kelvingrove Art Gallery and Museum this December!
Last Updated: 3rd October 2019

Sponsored Links

Popular Events

Bonkers Bingo is Back alongside Flip and Fill
Bonkers Bingo is returning to Mecca Bingo Hamilton on Saturday 14th March! Expect a night of Mayhem! Music! Games! Banter! and of course Bingo!
Family Stargazing
Experience stargazing on Scotland's largest rooftop garden at New Lanark - an out of this world event for all the family!
Rutherglen Comic Con
It's that time of year to suit up, put on your best cape and mask to make your way to the the Iconic Rutherglen Town Hall on Saturday 1st February 2020 for the return of Rutherglen Comic Con!
Lanark Market Car Boot Sale
An undercover car boot sale is held at Lanark Agricultural Market on Sundays throughout the year from 8am to 2pm!
A Night at the Darts
Scottish number one and two-times World Champion Gary Anderson is heading up a full packed Scottish A Night At The Darts at Motherwell Concert Hall on Friday 23rd October!

Advertise With Us

Advertise With Us

Looking to reach new customers? We offer a variety of advertising options with prices starting from just £30 per month!

Click here to find out more »